Autoimmune: Traveling a New Path

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My Journey with Autoimmune Disorders: Finding Strength in Adversity

Living with an autoimmune disorder can feel like a constant battle. The unpredictability, the flare-ups, and the relentless quest for answers can be overwhelming. But in this journey, I have discovered strength, resilience, and a community of warriors who share this path.

The Diagnosis

My journey began over 25 years ago, when I first noticed symptoms that seemed like a heart issue. Chest pain, nerve pain along and down my left arm, random pains around my body and pins and needles/numbness in hands and fingers. After running on countless treadmills and visiting many Emergency Rooms, my heart passed every stress test – thankfully! As the years wore on my focus became my family and career and the fatigue, joint pain, and unexplained rashes became my new normal. After innumerable doctor visits, blood tests, and consultations, I finally received a diagnosis: Fibromyalgia, Chronic Fatigue Syndrome and Arthritis.

Navigating the Treatment Maze

The diagnosis was both a relief and a new challenge. Relief because I finally had an answer, but a challenge because it marked the beginning of a complex treatment journey. I tried various medications, from immunosuppressants to biologics, each with its own set of side effects and adjustments.

Embracing Lifestyle Changes

Beyond medication, I discovered the importance of lifestyle changes. I switched my diet and started doing 5:2 fasting. The low calorie days have been easier than I thought and have helped with some of the brain fog.

https://www.healthline.com/nutrition/the-5-2-diet-guide

Exercise became a crucial part of my routine. Gentle activities like yoga, stationary bike riding and walking helped reduce stiffness and improve my overall well-being. While high-intensity workouts were out of the question, finding a balance that worked for my body was key.

This yoga class is where I started and still find that it really helps before bedtime.

Mental Health Matters

Living with an autoimmune disorder isn’t just a physical challenge; it’s an emotional one too. Anxiety and depression often accompany chronic illnesses. Seeking therapy and connecting with support groups provided me with a safe space to share my fears and frustrations. It was comforting to know I wasn’t alone.

https://www.reddit.com/r/Fibromyalgia/

Find a Support Group

Staying Informed and Empowered

Knowledge is power. I made it a point to stay informed about my condition. I read books, followed reputable medical websites, and joined online communities where I could learn from others’ experiences. This proactive approach helped me make informed decisions about my treatment and self-care. If I could go back and give my younger self a piece of advice…it would be better prepared for your Dr. visits. Don’t settle or stay with a Dr. if they aren’t interested in getting to the bottom of your problem. I took needless medications and even potentially surgery looking for answers. I’m 54 years old and it took me into my 50s to understand the Dr. needs to be working for you as much as with you.

Finding Joy in Small Victories

Living with an autoimmune disorder is a marathon, not a sprint. Celebrating small victories has become a part of my journey. Whether it’s a day without pain, a new recipe that works wonders, or simply feeling good enough to enjoy a hobby, these moments are worth cherishing.

Looking Ahead

While the journey with an autoimmune disorder is ongoing, I’ve learned to navigate its ups and downs with as much grace and resilience as I can muster. Every day is a step forward, and every challenge is an opportunity to grow stronger.

To my fellow warriors, know that you are not alone. Together, we can face this journey with courage and hope. Let’s continue to share our stories, support one another, and find strength in our shared experiences.

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Join the Conversation

I’d love to hear from you. Have you been diagnosed with an autoimmune disorder? What has your journey been like? Share your thoughts and experiences in the comments below. Together, we can create a supportive and empowering community.